Tuesday, March 15, 2016

New Petition Video



Pain sufferers do not belong in the "war on drugs" Fix this before more suicides occur!

Letter To: President of the United States U.S. Senate



Stop using pain sufferers as a community in the "war on drugs"! Help pain sufferers to not be treated as "drug addicts" rather than what we really are: "Drug Dependent"!



https://www.change.org/p/president-of-the-united-states-pain-sufferers-do-not-belong-in-the-war-on-drugs-fix-this-before-more-suicides-occur

Tuesday, March 8, 2016

Unveiling Our New Wordpress Website

Unveiling Our New Wordpress Website
Use links below to save image.
We are inviting you to join our brand new Wordpress website shortly. This wonderful website has everything that you all have asked for. We have articles on all pain disorders, alternative medicine, insurance, assistive technology, caregiver Information, medications, comorbidities or side effects of having chronic and intractable pain, diagnostic tests, the psychology of chronic pain, resource books and links, partners, etc. This new site has many interactive areas as well. We have a section on teaching you how to distract yourself from your pain by doing art, finding chronic pain images to share, chronic pain poems to share, Dr Patty's questions of the week, recipes and much much more. The second new interactive section is designed to help you learn to live and cope with a life of chronic pain. Through the exercises that are there, you will learn to talk about your pain to non pain sufferers as well as pain sufferers. My staff and I will be with you every step of the way. We will have a brand new chat that will be open 24/7. I will make myself available to you 24/7 for emergencies or set up a time to talk with me about issues you might be facing in your life of pain. Many of the sections are for members only. To become a member now, all you do is make a profile here (http://www.chronicintractablepainandyou.net). Once the new site is open, you will automatically be redirected to the new website (http://www.chronicintractablepainandyou.org). You can also wait until the new site opens and then join here http://www.chronicintractablepainandyou.org

Saturday, January 2, 2016

THE FUTURE FIBROMYALGIA DRUGS? PHARMACEUTICAL SOURCE PREDICTS FOUR DRUG APPROVALS IN COMING YEARS

THE FUTURE FIBROMYALGIA DRUGS?
PHARMACEUTICAL SOURCE PREDICTS FOUR DRUG APPROVALS IN COMING YEARS


Both Sleep and Pain Improved 
“Our new analyses of the BESTFIT data show that those patients who reported the greatest improvement in sleep quality were the most likely to experience pain relief,” Seth Lederman, MD, Tonix CEO​
Tonix – the developer of the drug – is moving fast. They reported that their Phase II clinical trial for Tonmya was filled in June of this year and reported results on the trial last month.They’ve already begun final (Phase III) trials.
A former study using EEG indicated the drug was increasing restorative sleep, which in turn was associated with reductions in pain, fatigue and depression. In a good sign for those in really severe pain, the most recent studies tied together pain levels and sleep quality; those FM patients in the most pain received the most improvements in sleep quality.
Dr. Lederman, Tonix CEO, emphasized that the drug is not a sleeping pill; it doesn’t just knock you out – it improves sleep quality.

To Read More, please click this link:

http://www.chronicintractablepainandyou.net/apps/forums/topics/show/13295568-the-future-fibromyalgia-drugs-

Friday, December 11, 2015

Topic: Controversy Grows over Journal Article on Pain Treatment


It’s not uncommon for colleagues in the medical profession to disagree. Egos and different medical backgrounds can sometimes lead to heated discussions about the best way to treat patients. But those arguments are usually kept private. That is why it is so unusual for a prominent pain physician to publicly call for another doctor to resign or be fired from her faculty position at a prestigious medical school.

“I believe she should resign her academic post,” says Forest Tennant, MD, referring to Jane Ballantyne, MD, a professor at the University of Washington School of Medicine, who recently co-authored a controversial article in the New England Journal of Medicine (NEJM) that said reducing pain intensity should not be the goal of doctors who treat chronic pain patients. The article also suggests that patients should learn to accept their pain and move on with their lives.

“For somebody in her position as a professor at a university to call for physicians to quit treating pain – or pain intensity – whether acute, chronic, whether rich, poor, disabled or what have you, is totally inappropriate. And it’s an insult to the physicians of the world and an insult to patients. And frankly, she should not be a professor.” Tennant told Pain News Network.

“To suggest that physicians should no longer treat pain intensity and let patients suffer goes beyond any sort of decency or concern for humanity.”



To Read More Please Click This Link:

http://www.chronicintractablepainandyou.net/apps/forums/topics/show/13286284-controversy-grows-over-journal-article-on-pain-treatment?next=

To Read More Please Click This Link:

http://www.chronicintractablepainandyou.net/apps/forums/topics/show/13286284-controversy-grows-over-journal-article-on-pain-treatment?next=

Wednesday, December 2, 2015




Hello Everyone! It's Me, again... Karla

If you're a member of our main website, come and join in on our Discussion Blog. We are sharing our experiences with Fibromyalgia...
Here is the link for the Discussion Blog:

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
*If you're not a member of our main website and want to become a one, please click this link to register!

Hope you will come and join us! Have a happy low pain evening!
Karla Rabel Lpn-vp​ (Dr. Patty's Vice President @ Dr. Pattys Chronic-Intractable Pain and You Sites, Inc.).

Wednesday, November 25, 2015

Topic: Tale of Two Suicides; Lessons for Opioid Public Policy


For one it was the best of times, for the other, the worst. At no time did the paths of their lives cross, but they shared the same fate, one most would consider a tragedy. Their legacies, for pain and public policy, could not have been more different…
I knew one, only heard of the other; both dramatically affected my life.

Bob was a marine. He had valiantly served his country, and he was proud of it. His identity was so tied to his service that he could not handle the thought of being any less of a marine, a warrior… a man, whatever that means. His back injury robbed him of that identity, and he struggled in a futile attempt to regain that which he no longer was, or, at least thought he was. Perception is reality, and his perception was that he was no longer what he wanted to be, needed to be.

Surgeries and elixers, therapies traditional and non-traditional. All tried in a vain attempt to rid himself his pain. All failed. Some made his pain worse. He used pain meds to numb the pain, but they couldn’t restore his manhood. In desperation, he kept taking more and more. After a while, he gave up the hope for a cure. He was a broken man, not just physically, but also mentally and spiritually. The meds became a temporary reprieve from his painful reality. I was his doctor. I never really saw that brave marine. Rather, I saw a broken, staggering man, subservient to the world his pain had created for him. Our goal for any treatment is to improve one’s function. For many, opioids accomplish that. Not for Bob.

To Read More, please click this link:

http://www.chronicintractablepainandyou.net/apps/forums/topics/show/13279442-tale-of-two-suicides-lessons-for-opioid-public-policy

Monday, November 23, 2015

Topic: Medical Researchers Analyze Social Media to Understand Side Effects of Pain Meds



Medical Researchers Analyze Social Media to Understand Side Effects of Pain Meds

Harnessing the power of social media, medical researchers have sifted through more than two billion tweets and online posts to study the harmful side effects of narcotics medication taken for chronic pain. The research team, led by the Cedars-Sinai Center for Outcomes Research and Education, reviewed a vast collection of patient entries on Twitter and social media forums such as askapatient.com and patientslikeme.com.
The unfiltered sentiments posted on these sites revealed details not often captured by physicians or traditional clinical research about the gastrointestinal side effects of narcotics medication. In online messages, for example, some patients described experiencing severe constipation that was even more debilitating than their underlying illnesses.
The researchers believe the study is the first of its kind to analyze social media data related to gastrointestinal side effects from narcotics. “Social media can be used as a huge epidemiological database, a treasure-trove of insights from patients about their illness experiences, their treatments, and their attitudes and beliefs about health and disease,” said Brennan Spiegel, MD, MSHS, director of Cedars-Sinai Health Services Research and director of the Center for Outcomes Research and Education.
The study appears online in the Journal of Opioid Management. 

To Read More, please click this link:
http://www.chronicintractablepainandyou.net/apps/forums/topics/show/13278570-medical-researchers-analyze-social-media-to-understand-side-effects-of-pain-meds

Topic: Opioids Saved My Life




My new life of chronic pain started in May of 2005. After being diagnosed with degenerative disc disease, I was given a series of 3 epidural steroid injections with a corticosteroid made by Pfizer called Depo-Medrol. I had no relief from the first two injections, but my doctor insisted that I try a third one. He struggled to get the needle into the epidural space, probably because of scar tissue in my back caused by a prior back surgery, a laminectomy.

After the 3rd steroid injection, I had a severe, instant headache, which was relieved somewhat when I laid down. The doctor had punctured my dura, the outer lining of the spinal cord, which caused a spinal leak. He was defensive when I told him about my headache pain, saying, “No way, there was no fluid in my syringe.” After an unsuccessful blood patch, I ended up in the ER a week later with the worst, throbbing headache I ever suffered. Every time I lifted my head I vomited violently. The doctor ordered numerous tests and he finally diagnosed me with too much STRESS! I knew something had gone wrong during the epidural steroid injection, yet my doctor blamed me for the harm he did to my spine. My pain worsened over time and it became so intense that I thought about suicide.



To Read More, please click this link:

http://www.chronicintractablepainandyou.net/apps/forums/topics/show/13278543-opioids-saved-my-life?next=

Topic: Is Krill Oil 48 Times Better Than Fish Oil?


Krill oil is made from krill, a small, shrimp-like crustacean that inhabits the cold ocean areas of the world. Despite their small size, krill make up the largest animal biomass on the planet. There are approximately 500 million tons of krill roaming around in northern seas.

Krill oil, like fish oil, contains omega-3 fats such as eicosapentanoic acid (EPA) and docosahexanoic acid (DHA). However, in fish oil, these omega-3 fats are found in the triglyceride form. In krill oil, they are found in a double-chain phospholipid structure. The fats in human cell walls are in the phospholipid form.

The phospholipid structure of the EPA and DHA in krill oil makes them much more absorbable. Krill oil also contains vitamin E, vitamin A, vitamin D, and canthaxanthin, which is a potent antioxidant.

The antioxidant potency of krill oil is, in terms of ORAC (Oxygen Radical Absorptance Capacity) values, 48 times more potent than fish oil.

To Read More, please click this link:

http://www.chronicintractablepainandyou.net/apps/forums/topics/show/13278529-is-krill-oil-48-times-better-than-fish-oil-?next=

Tuesday, September 1, 2015

Topic: Specialist of In The News (Volunteer Position)


Specialist of In The News (Volunteer Position)


The Specialist (In the news) is a position for those who have specific knowledge of a specific pain In The News loves to post about their subject by posing articles, chats, videos, etc. This position reports directly to the Vice President (Karla Rabel) and to Dr. Patty.



The basic responsibilities of a Specialist (In the news) are:



• “Friend” Dr. Patty and all staff



• Customize your profile and put up a picture, it can be a tag or a pet or an avatar.



Check your private email daily as notifications and private messages are sometimes routed through general email (A CIPAY mailbox will be given to you for CIPAY business only).



•Check your CIPAY inbox daily for messages. We request that you respond to member’s comments and questions within 24 hours (at the most, 48 hours). If you are unable to answer the question, please ask another staff member to help.



Please make sure that you have read the petition and have signed it.



•You may choose the group that you wish to lead. It is your responsibility to monitor these groups for inappropriate actions, comments and questions.



•You will post one article a week to each of your groups. Your staff mentor will help you to learn how to complete the needed research and show you how to accurately post it to the group.



•Other duties as assigned



Topic: Specialist of Lupus (Volunteer Position)


Specialist of Lupus (Volunteer Position)


The Specialist (Lupus) is a position for those who have specific knowledge of a specific n loves to post about their subject by posing articles, chats, videos, etc. This position reports directly to the Vice President (Karla Rabel) and to Dr. Patty.

The basic responsibilities of a Specialist (Lupus) are:

• “Friend” Dr. Patty and all staff

• Customize your profile and put up a picture, it can be a tag or a pet or an avatar.

Check your private email daily as notifications and private messages are sometimes routed through general email (A CIPAY mailbox will be given to you for CIPAY business only).

•Check your CIPAY inbox daily for messages. We request that you respond to member’s comments and questions within 24 hours (at the most, 48 hours). If you are unable to answer the question, please ask another staff member to help.

Please make sure that you have read the petition and have signed it.

•You may choose the group that you wish to lead. It is your responsibility to monitor these groups for inappropriate actions, comments and questions.

•You will post one article a week to each of your groups. Your staff mentor will help you to learn how to complete the needed research and show you how to accurately post it to the group.

•Other duties as assigned

Topic: Specialist of Lupus (Volunteer Position)


Specialist of Lupus (Volunteer Position)


The Specialist (Lupus) is a position for those who have specific knowledge of a specific n loves to post about their subject by posing articles, chats, videos, etc. This position reports directly to the Vice President (Karla Rabel) and to Dr. Patty.

The basic responsibilities of a Specialist (Lupus) are:

• “Friend” Dr. Patty and all staff

• Customize your profile and put up a picture, it can be a tag or a pet or an avatar.

Check your private email daily as notifications and private messages are sometimes routed through general email (A CIPAY mailbox will be given to you for CIPAY business only).

•Check your CIPAY inbox daily for messages. We request that you respond to member’s comments and questions within 24 hours (at the most, 48 hours). If you are unable to answer the question, please ask another staff member to help.

Please make sure that you have read the petition and have signed it.

•You may choose the group that you wish to lead. It is your responsibility to monitor these groups for inappropriate actions, comments and questions.

•You will post one article a week to each of your groups. Your staff mentor will help you to learn how to complete the needed research and show you how to accurately post it to the group.

•Other duties as assigned

Topic: Specialist of Polls (Volunteer Position)


Specialist of Polls (Volunteer Position

The Specialist (Polls) is a position for those who have specific knowledge of a specific area of expertise and loves to post about their subject by posing articles, chats, videos, etc. This position reports directly to the Vice President (Karla Rabel) and to Dr. Patty.

The basic responsibilities of a Specialist (Polls) are:

• “Friend” Dr. Patty and all staff

• Customize your profile and put up a picture, it can be a tag or a pet or an avatar.

Check your private email daily as notifications and private messages are sometimes routed through general email (A CIPAY mailbox will be given to you for CIPAY business only).

•Check your CIPAY inbox daily for messages. We request that you respond to member’s comments and questions within 24 hours (at the most, 48 hours). If you are unable to answer the question, please ask another staff member to help.

Please make sure that you have read the petition and have signed it.

•You may choose the group that you wish to lead. It is your responsibility to monitor these groups for inappropriate actions, comments and questions.

•You will post one article a week to each of your groups. Your staff mentor will help you to learn how to complete the needed research and show you how to accurately post it to the group.

•Other duties as assigned

Saturday, August 29, 2015

Poll Is There A Stigma Where You Live About Taking Opiates?


Poll Is There A Stigma Where You Live About Taking Opiates?

To vote, please click on this link:

http://www.chronicintractablepainandyou.net/chronic-pain-polls-1

Poll What Clothes are Worst for Fibromyalgia Pain?


Poll What Clothes are Worst for Fibromyalgia Pain?

To vote, please click on this link:
http://www.chronicintractablepainandyou.net/chronic-pain-polls-1

Poll What helps you when you are in pain?


Poll What helps you when you are in pain?


To vote, please click on this link:

http://www.chronicintractablepainandyou.net/chronic-pain-polls-1

Poll Do you ever experience aura with your migraine attacks?


Poll Do you ever experience aura with your migraine attacks?


To vote, please click on this link:
http://www.chronicintractablepainandyou.net/chronic-pain-polls-1

Poll Pain Patients: What is one thing you want your family, friends and others to understand or do?


Poll Pain Patients: What is one thing you want your family, friends and others to understand or do?

To vote, please click on this link:

http://www.chronicintractablepainandyou.net/chronic-pain-polls-1

Poll When are you most affected by pain?

Poll When are you most affected by pain?

To vote, please click on this link:
http://www.chronicintractablepainandyou.net/chronic-pain-polls-1